If you have a
FABULOUS FUND RAISING EVENT
and you want everyone to know about it, please contact us and we will post it on this page.
E-mail these caring individuals and they will write back and then call you.
People to contact and inform them about our new, unusual, unknown skin diseases.
National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812–8923